Dancing is the drug I can’t live without: Ballet star, 18, who has cystic fibrosis lands place at leading dance school Tom Oakley, 18, has won a place at a leading dance school just as Billy Elliot did Unlike his fictional counterpart he has done so with a life-threatening condition Tom, who trains for 60 … Read more
Big Brother winner Reggie Bird shares heartbreaking photos of son Lucas battling cystic fibrosis – and says they are ‘taking each day as it comes’ By Kristy Johnson For Daily Mail Australia Published: 15:26 BST, 30 May 2021 | Updated: 15:26 BST, 30 May 2021 Reggie Bird shared heartbreaking photos of her son Lucas’ cystic … Read more
Dare we dream? Amid the flurry of tweets in response to our articles over the past fortnight that predicted the Government would soon strike a deal for a lifesaving cystic fibrosis drug, this simple sentence stood out. It summed up the hopes – and fears – of thousands of British families blighted by this horrible … Read more
It has been a little under ten months since Elliott Usher died, aged just 30 – a victim of the incurable genetic disease cystic fibrosis. Like so many others, he was taken far too young, another statistic in a grim toll that rises, week by week. But he was, of course, so much more. He was … Read more
When Nicole Adams says ‘it’s great to be alive’, it’s impossible not to smile. From just about anyone else, it would be a pleasant, if fairly unremarkable platitude. But coming from the 28-year-old Belfast native, it is simply joyous. For it’s no exaggeration to say that, just six months ago, Nicole’s life hung in the … Read more
‘I’m a cystic fibrosis warrior, and I beat COVID-19.’ That’s what one six-year-old Tennessee boy said after beating the odds and making a full recovery from the novel coronavirus that has plagued the world. Joseph Bostrain suffers from cystic fibrosis, a disease that causes the body to produce thick and sticky mucus that can clog … Read more
It’s been hailed as a wonder drug with the potential to extend the lives of thousands of people with cystic fibrosis. But patients across the UK still can’t get their hands on Orkambi – despite it being a year since Theresa May promised to take action. The drug, which slows lung deterioration, received its European … Read more